병마에 위축되지 않고 당당히 드러내기까지

폴란드 바르샤바(Warsaw)에 사는 율리아나 유세프(Yulianna Yussef)는 종양이 반점으로 나타나는 선천적 색소세포성모반(Congenital Melanocytic Nevus)이라는 병을 앓고 있습니다. 이는 전 세계 인구 중 1% 미만에게만 발병하는 희귀 질환입니다. 이 때문에 율리아나의 몸은 수천 개의 반점에 뒤덮여 있고, 어릴 때부터 '달마시안'이라는 놀림을 받았습니다. 하지만 이 ‘점’이 율리아나를 특별하게 만드는 ‘점’입니다.

There are so many children with CMN in the world.. I wish I could visit everyone!
meet Gi Gi This little princess has already had 5 expander operations on her arm, she is very brave and positive , I'm so proud i could meet her and everyone who joined my CMN session last Sunday☀️ #bareyourbirthmark #inmyskiniwin #cmn #nevus #smile #positive #mind #optimistic #in #every #life #borndifferent #travel #around #the #world #get #to #know #new #people #discover #little #girl #social #project #bringbirthmarktotheworld #photo #birthmark #unique

A post shared by Yulianna Yussef (@yulianna.yussef) on Nov 17, 2016 at 7:56am PST

율리아나는 #타고난점을드러내기(#bareyourbirthmark)라는 해시태그를 달아 반점이 가득한 피부를 자연스럽게 노출한 일상 사진을 인스타그램에 공유했습니다. 직접 감상해보시죠!

 

I was born different.You were born different. We are all born different. Don't be afraid to be yourself #bareyourbirthmark #RunwayforAll #inmyskiniwin #birtmark #nevus #naevus #a #lot #of #spots #do #not #be #afraid #to #different #and #unique #italy #beach #sunny #and #sea #girl #bikini #getdiscovered #discover #good #feelings

A post shared by Yulianna Yussef (@yulianna.yussef) on May 31, 2016 at 8:20am PDT

 

I want to say THANK YOU! for all of u, who read my story ,who supporting me and people like me! It's very important for us! Thanks to all people with the same skin, who wrote me! It was so so nice to spoke with u! I'm so glad that one my step makes u feel better! We will do more!Blessing ☀️☀️☀️ #support #our #birtmarks #nevus #bareyourbirthmark #no #hide #just #a #litllebit #special #we #was #born #different #enjoy #your #life #be #happy #proud #of #all #of #us #photographer #photosession #photo #unique #followme #Krakow

A post shared by Yulianna Yussef (@yulianna.yussef) on Aug 12, 2015 at 4:15am PDT

 

So, a few days ago I get that nice shoes! ☝️ over theeereee ☝️ bespoke hand screen printed and hand crafted shoes nade by JustynaMedon (@addicted_to_patterns) & @mys_fashion_official from quality leather really comfortable special shoes for special people ! For more justynamedon.uk #bespokeprints #shoes #design #shoecraft #printedcollection #model #modeling #ootd #lookbook #style #fashion #makeup by @tarjamakeup #photo #professional #by @yaryna_pochtarenko #girl #infront #of #the #camera #long #ombre #olaplex #bareyourbirthmark #inmyskiniwin

A post shared by Yulianna Yussef (@yulianna.yussef) on Jun 21, 2016 at 1:47am PDT

자신의 결점을 꽁꽁 숨기는 대신 당당하게 드러낸 율리아나의 모습에 사람들은 환호와 격려를 보냈습니다. 여러분도 감추고 싶은 몸의 비밀이 있나요? 어쩌면 싸매는 것보다 내놓는 게 더 매력적일 수 있습니다. 주위 사람들에게도 율리아나의 용기를 공유해주세요!